Patients & Families
Welcome to the Patients and Families Section
Here you will find information and resources to support you and your family.
We have included some information leaflets which you might find useful if your child is on Long Term Ventilation or they are having an operation. As well as links for registered charities who can support you and your child with complex needs.
We would love to hear from you on how we can improve services for Children and Young people in the North West! Please information on the Patient Public Voice below.
Patient Public VOice
We need you to help improve services for Children and young people in the North West!
Click the picture above for more information on how you can get involved.
Your privacy is important to us. Click here to see how we use your personal information
Hospitals & units within the North West ODN
As a Network we support 25 units across the North West of England, Isle of Man and North Wales, who provide care for Children and Young People. Not all of the hospitals have the same service, for example some do not have Emergency Departments or carry out operations on Children and some do not have facilities for patients to stay overnight. Our job is to support your local hospitals to be able to deliver the best possible care to Children all across the North West, Isle of Man and North Wales.
We have a dedicated education team to support nurses and doctors in your local area to ensure they all have access to the same education and training across the region.
Click the map to find more information on your closest hospital.
Information Leaflets
Please click the pictures below to find information leaflets and guidance relating to your child and Paediatric Critical Care, Surgery in Children & Long Term Ventilation.
Charity Websites
Here you will find helpful registered charity webistes who can support you and your child with complex needs
Back up
Transforming Lives After Spinal Injuries This website offers support and information for people living with spinal injuries. “At Back Up, we inspire people affected by spinal cord injury to get the most out of life.”
Citizens Advice
We give people the knowledge and confidence they need to find their way forward – whoever they are, and whatever their problem. Our national charity and network of local charities offer confidential advice online, over the phone, and in person, for free.
Family Fund
Family Fund is the UK’s largest charity providing grants for families raising disabled or seriously ill children and young people.
New Life
Every day, Newlife is changing the lives of disabled and terminally ill children across the UK.
We offer a lifeline for families, providing life-changing and life-saving specialist equipment when and where it’s needed. Childhood cancers, birth defects, accidents, diseases and infections can all cause disability. They are affecting children and their families every day.
With your support, we can ensure more children get the best possible start in life and fulfil their potential.
Koala
Koala North West exists to provide children and their families with tailored practical and emotional support that improves wellbeing, reduces isolation and supports both children and care-givers to thrive.
Well Child
Giving seriously ill children the best chance to thrive. At home. WellChild is the national UK children’s charity making it possible for children and young people with exceptional health needs to be cared for at home instead of hospital, wherever possible.
Steps
Steps is the leading charity working for all those whose lives are affected by childhood lower limb conditions . Everything we do is about valuing and supporting individuals, families and carers affected by conditions which have an impact on the legs, hips or feet.
Rainbow Trust
The Rainbow Trust provide bespoke support for families who have a child with a serious illness. They offer the whole family support, regardless of diagnosis and are there for as long as a family needs them. The charity have a regional team in the North West of England