Information for parents & families 

Below is a selection of helpful resources, including links to information leaflets designed to support you in caring for your child who requires long term ventilation.

 

 

Guidance for travelling with LTV patients
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Travel and holidays with invasive LTV
Travel and holidays with NIV
Information for young people who use a ventilator
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Growing up using a Ventilator-A booklet for young people and young adults
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Cost of living information
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Information for health professionals to support families during the cost of living crisis-Oct 2022
Well Child Charity Cost of Living Information
Power shortages & LTV
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Parental Power Shortage Advice Letter – LTV
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