North West Childrens ODN Logo White

Patients & Families

Welcome to the Patients and Families Section

Here you will find information and resources to support you and your family.

Below we have provided some links for registered charities who can support young people and their families with complex needs.  These charities can provide practical, emotional and financial advice.  We have given a short summary around each charity for your information.

View charity websites
FAQS

FAQs

What is an ODN?

An ODN is an Operational Delivery Network. ODNs were established in April 2013, following the publication of the NHS England Strategy ‘Developing Operational Delivery Networks: The Way Forward’. They cover specialised services which span geographical areas where patient pathways often flow across a number of service interdependencies and organisations. ODNs focus on coordinating these pathways between providers to ensure consistent, equitable access to specialist resources and expertise.

The North West Paediatric Critical Care, Surgery in Children and Long Term Ventilation Operational Delivery Network (PCC SiC LTV ODN) aims to provide impartial clinical advice and expertise to all providers and commissioners across the North West of England (Cheshire and Mersey, Greater Manchester, Lancashire and South Cumbria), North Wales and the Isle of Man.

 

How do I contact the ODN team?

General Enquiries ODN.Office@mft.nhs.uk

Where can I find information about charities who can support me and my family?
Where can I find useful patient and family information?

You can find information to support patient and families at the bottom of this page.

Hospitals & units within the North West ODN

The NW PCC SiC LTV ODN serves a population of circa 7.3 million of which approximately there are 1.5 million children under the age of 16 years old covering an area of 14,165 km. 

View the map

Charity Websites

Back Up Charity Logo
www
Long term Ventilation, Patient Information
Back Up
Transforming Lives After Spinal Injuries This website offers support and information for people living with spinal injuries. “At Back Up, we inspire people affected by spinal cord injury to get the most out of life. “
Visit
Citizens Advice Logo
www
Long term Ventilation, Patient Information
Citizens Advice
We give people the knowledge and confidence they need to find their way forward – whoever they are, and whatever their problem. Our national charity and network of local charities offer confidential advice online, over the phone, and in person, for free.
Visit
Family Fund Logo
www
Long term Ventilation, Patient Information
Family Fund Charity
Family Fund is the UK’s largest charity providing grants for families raising disabled or seriously ill children and young people.
Visit
KOALA NORTH WEST
www
Patient Information
KOALA NORTH WEST
Koala North West exists to provide children and their families with tailored practical and emotional support that improves wellbeing, reduces isolation and supports both children and care-givers to thrive.
Visit
New Life CHairty Logo
www
Long term Ventilation, Patient Information
New Life Charity
The UK’s largest charitable provider of specialist equipment for disabled children Our Nurses support families, our researchers work to improve children’s health, our dedicated team campaign for a fairer deal and our volunteers and supporters know that 100% of every penny they donate or fundraise will be used for equipment …
Visit
Rainbow Trust-Supporting Families with a Seriously Ill Child
www
Patient Information
Rainbow Trust-Supporting Families with a Seriously Ill Child
The Rainbow Trust provide bespoke support for families who have a child with a serious illness. They offer the whole family support, regardless of diagnosis and are there for as long as a family needs them.  The charity have a regional team in the North West of England.
Visit
Well Child Logo
www
Long term Ventilation, Patient Information
WellChild Charity
Giving seriously ill children the best chance to thrive. At home. WellChild is the national UK children’s charity making it possible for children and young people with exceptional health needs to be cared for at home instead of hospital, wherever possible.
Visit

Information Sheets

pdf
209 KB
Long term Ventilation, Patient Information
Parental Power Shortage Advice Letter – LTV
Considering Risks if there is a Power Shortage.For children dependent on Medical Technology the potential of a shortage of national power is almost certainly a worry. This letter is to help you plan and prepare in the unlikely eventuality that there are planned power cuts, and help you consider what …
Download
pdf
680 KB
Long term Ventilation, Paediatric Critical care, Patient Information, Surgery in Children
CYP Online Resources to assist Health Professionals
Please find useful CYP friendly resources collated by North Thames Paediatric Network, South Thames Paediatric Network, and the following Paediatric Critical Care Operational Delivery Networks: South West, East of England, East Midlands ,Yorkshire & Humber and North West & North Wales.  This information will help professionals sign post children, young …
Download
Well Child Logo
www
Long term Ventilation, Patient Information
Well Child Charity Cost of Living Information
This link  provides articles on support for higher energy bills, energy saving tips and the Government support available from the WellChild Charity.
Download
pdf
202 KB
Long term Ventilation, Patient Information
Growing up using a Ventilator-A booklet for young people and young adults
Download
Testicular Health Patient and Family Information
html
Patient Information, Surgery in Children
Testicular Health Patient and Family Information
Download