Below are a list of useful documents

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Long term Ventilation
Minutes – NW LTV ODN Oversight Meeting 15th December 2023
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Long term Ventilation
WellChild – Family Advisor Service Online Referral Form
www
Long term Ventilation
WellChild – interactive platform for finding accessible services, activities and support
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303 KB
Long term Ventilation
Minutes – NW LTV ODN Oversight Meeting 15th September 2023
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257 KB
Long term Ventilation
Minutes – NW LTV ODN Oversight Meeting 16th June 2023
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304 KB
Long term Ventilation
Minutes – NW LTV ODN Oversight Meeting 17th March 2023
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273 KB
Long term Ventilation
Minutes – NW LTV ODN Oversight Meeting 9th December 2022
Long term Ventilation, ODN Home, Paediatric Critical care, Surgery in Children
Guidelines, Protocol, Pathway and Policy Ratification Standard Operational Procedure
Guideline Ratification Guidance Document RatifiedGuideline Ratification Guidance Document Ratified
Long term Ventilation, Paediatric Critical care, Surgery in Children
Information for professionals to share with patients and families/carers to support end of life care
Long term Ventilation, Paediatric Critical care, Training Courses
RMCH Tracheostomy Training Sessions
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202 KB
Long term Ventilation, Patient Information
Growing up using a Ventilator-A booklet for young people and young adults
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154 KB
Long term Ventilation, Paediatric Critical care, Surgery in Children
Governance Structure PCC SiC LTV ODN
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Long term Ventilation, Patient Information
Well Child Charity Cost of Living Information
This link  provides articles on support for higher energy bills, energy saving tips and the Government support available from the WellChild Charity.
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Long term Ventilation, Patient Information
Family Fund Charity
Family Fund is the UK’s largest charity providing grants for families raising disabled or seriously ill children and young people.
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Long term Ventilation, Patient Information
Citizens Advice
We give people the knowledge and confidence they need to find their way forward – whoever they are, and whatever their problem. Our national charity and network of local charities offer confidential advice online, over the phone, and in person, for free.
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Long term Ventilation, Patient Information
Back Up
Transforming Lives After Spinal Injuries This website offers support and information for people living with spinal injuries. “At Back Up, we inspire people affected by spinal cord injury to get the most out of life. “
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Long term Ventilation, Patient Information
New Life Charity
The UK’s largest charitable provider of specialist equipment for disabled children Our Nurses support families, our researchers work to improve children’s health, our dedicated team campaign for a fairer deal and our volunteers and supporters know that 100% of every penny they donate or fundraise will be used for equipment …
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Long term Ventilation, Patient Information
WellChild Charity
Giving seriously ill children the best chance to thrive. At home. WellChild is the national UK children’s charity making it possible for children and young people with exceptional health needs to be cared for at home instead of hospital, wherever possible.
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153 KB
Long term Ventilation
Information for health professionals to support families during the cost of living crisis-Oct 2022
Cost of Living Crisis: Information for health professionals to support families. Charity Information for Professionals to support families during the cost of living crisis
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680 KB
Long term Ventilation, Paediatric Critical care, Patient Information, Surgery in Children
CYP Online Resources to assist Health Professionals
Please find useful CYP friendly resources collated by North Thames Paediatric Network, South Thames Paediatric Network, and the following Paediatric Critical Care Operational Delivery Networks: South West, East of England, East Midlands ,Yorkshire & Humber and North West & North Wales.  This information will help professionals sign post children, young …
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601 KB
Long term Ventilation
North West Paediatric LTV ODN Oversight Group Minutes – 16th September 2022
MInutes
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209 KB
Long term Ventilation, Patient Information
Parental Power Shortage Advice Letter – LTV
Considering Risks if there is a Power Shortage.For children dependent on Medical Technology the potential of a shortage of national power is almost certainly a worry. This letter is to help you plan and prepare in the unlikely eventuality that there are planned power cuts, and help you consider what …
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216 KB
Long term Ventilation
North West Paediatric LTV ODN Oversight Group Minutes – 6th May 2022
MInutes
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156 KB
Long term Ventilation
North West Paediatric LTV ODN Oversight Group Minutes – 23rd February 2022
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294 KB
Long term Ventilation
Terms of Reference – Long Term Ventilation
Paediatric Long Term Ventilation Operational Oversight Group Terms of Reference